Journey for a life renewed

The weekend is finally here.

Sat, 09 Feb 2008 02:15:22 -0500

I remember when that used to mean party time to some people.
Not me of course. Just some others who did that kind of thing.

This week it means dealing with coming off an unsettled week of fronts moving through which meant different reactions in the lungs.

It also means some serious workouts schedules to get things moving in a definite direction.

The fogs of Sunday turned into more.

Wed, 06 Feb 2008 03:14:18 -0500

Later on in the day, perhaps along with a weather change that was coming through, my situation changed.

The air became herder to come by and I spent the entire night seated at my PC. There is no attempting going to sleep at a time like this as the o2 simply does not reach the lungs.

Sunday is a day of rest? Not for me.

Sun, 03 Feb 2008 11:49:45 -0500

We have an overcast day right now and that also could be a term to describe my mood. It's not that I feel terrible, but like I am in a fog wandering around.

But I have workouts to continue and some daily living chores that I have been putting off.

Yesterday my neighbor Pat was over and helped...no not helped, but made a pot of Beef vegetable soup. Oh was that good.Of course now that I know how to do it I think I will be on my own. :-)

On with the important things.

Fri, 01 Feb 2008 21:20:13 -0500

Friday night and all is peaceful here at home.

I am s l o w l y feeling better and have been able to fine tune some living necessities to make my life easier and more stable. Getting these cheap standard heat controls to give me what I want temperature wise. My house is cooler than it used to be, but my breathing is much freer and consistent.

At Home again (day3)

Thu, 31 Jan 2008 00:14:15 -0500

Today being Wed I was able to a little more settled back at home.

After the visit from the Nurses yesterday I was able to calm down a bit.

You may not fully understand what I am getting at, but basically it is good to know that someone will be stopping in from time to time for checking vitals, etc. It's my hope that with them stopping plus the monitoring unit they are bringing I might head off getting something that will send me to the "Big House" for a while.

My Physical Therapist stopped today also and we have restarted my exercising. Granted we are back to the start again, but I feel that once I get through the funk I always have from the Antibiotics that I will be well on my way to getting back into shape.

What Hump day is NOT supposed to be !

Tue, 29 Jan 2008 07:49:53 -0500

Last Wednesday after I made that posting, I started to go downhill. Now, anyone that is close to me knows that my Medical situation can change in an hours time. This night was almost that case.

That evening and throughout the night my breathing became very difficult. I stayed up most of the night getting at best 30 to 45 mins rest early in the morning on Thursday

Hump Day. That used to mean something... What was it?

Wed, 23 Jan 2008 19:15:30 -0500

Tis the middle of the week.
My Therapist visited today and gave me a few more stretching exersises. These are all from a standing position and I can see how they will help build some of the muscles in my body. Or should I say condition the muscles better for me to build them up.

It has been a moderate day for the breathing. Tomorrow will be better.

I am slowly getting my burst of Prednisone tapered down. I think I will contact the boss and see if I should just continue getting rid of it over the next couple weeks. That stuff does its job, but I just don't like being on it unless I really have to.

Oh well, one more round of workouts to so yet tonight.

Bitter Cold outside, Warm and toasty inside

Tue, 22 Jan 2008 07:05:52 -0500

The last few days have shown much of the country to be under the influence of a bitter cold airmass from the North. Luckily I have been able to shield myself from most of this by staying indoors.

Exercising 2 times a day, though not strenuous, has helped keep my mind on the most inportant thing for me right now. Stay warm, don't cat a bug, and get my sorry butt built up with more strength.

The biggest problem is that I'm not doing as well on the weight so need to concentrate on that this week.

Now that there is a goal in sight...

Sun, 20 Jan 2008 17:00:40 -0500

I am continuing to do work on the site so that we will have as much information to share as is possible.

The basic layout of the site is done, however I am working on adding the full Gallery Program for it so that we will have visuals also. I have every plan to document the Journey to the highest degree possible. I was told we will have Photographs taken during the Operation, as well as what these next to dead Lungs look like. It is close to coming alive so look for it soon.

The visit to Cleveland is done.

Tue, 15 Jan 2008 23:05:38 -0500

Well, the day we spent in Cleveland was not wholly what I wanted, and yet better than I expected.

We got there and I did early Pulmonary Function Testing which did show more slippage. I also did an Arterial Blood gasexam which pinpointed the percentage of O2 in my blood stream.

Then iw was the dreaded 6 minute walk in which they get a measurement of sorts of the body's strength. I had problems with it the last visit so was hoping to do much better.

Monday morning confusion

Mon, 14 Jan 2008 09:34:21 -0500

Ah, but it's not just any Monday morning.
Today I am getting around for the 2 day trip to Cleveland

The adage of packing light for an overnight stay has not applied to me for many years now.
Seems like I am packing for an Army now.

Today, it is a big uh oh.

Sat, 12 Jan 2008 16:22:10 -0500

Since returning from my test in Toledo things have gone downhill a bit.
I woke up Thursday morning with a nose the was running like the proverbial open faucet.

That settled down after a few hours and then the scratchy throat became present.

Last trip out, now getting ready for Cleveland

Thu, 10 Jan 2008 23:49:37 -0500

I had a couple of fillings that needed work on so made a trip to my Dentist this afternoon. It wasn't too bad and I was home in about 1 hour.

It would seem that I may be coming down with a cold. I had a drippy nose last night and today a bit of a sore throat. So I am watching it and hoping I don't have to take steps to get on some of my heavier medications. Especially with the Cleveland trip.

Toledo Test may be the last of the local testing

Tue, 08 Jan 2008 00:22:48 -0500

Today I went in to the Medical University Hosp of Ohio.
The reason for this visit was to have a Profusion Scan done. This is where they inject an Isotope into my blood and then take a series of Pictures of my lungs.
This scan was needed to be done before I visit Cleveland this coming week to meet the Surdeon of the team and do a few other tests. I do believe that this will be the last of the Local Testing and hopefully they will have enouugh information on whether I will get of that special list.

December 14th Visit #2 at Cleveland Clinic.

Sat, 22 Dec 2007 02:37:12 -0500

On the 13th of December I was taken to Cleveland for my second full day of testing and meetings. We had gone over the afternoon before in order to get into our Hotle Room and supper, and then relaxing for the day ahead which was to start at 7:45 AM.